“Everyone was a lot more comfortable with my situation when I was laughing,” she wrote in a January 2025 essay published in People, “and that came back around to make me feel more comfortable too.”
While Eby had documented her symptoms since 2022, the illness’ toll on her body had rapidly progressed within the last year, prompting her to have a feeding tube installed in June 2025.
In January, the TikToker shared she had begun to have difficulty speaking and swallowing, which was also the topic of one her last social media posts.
“I’m not ready to give up talking,” she said in a Sept. 3 TikTok. “Also, my head and neck have to be in the exact right position for me to even get any words to come out. I can’t tell if my breath isn’t strong enough to fight the breathing machine anymore or if it’s just my lips are weak.”
However, with her signature wit, Eby quipped, “But you know what they say, loose lips sink… Brooke’s will to live.”
But before her death, the influencer reflected on what she hoped part of her legacy would be.
“My TikTok presence will live on after I die,” she continued in her People essay. “I hope it serves as a visual diary for anyone who gets diagnosed and needs a guide.”
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